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Parenting and chronic illness – one mum's experience

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Tag: understanding

A wall of hearts and a reminder to remember

Today was my first day in the office (since having started my job in September!) and I decided to take … More

covid-19, family, forgiveness, grief, loss, love, pandemic, thankfulness, understanding

Carefree or cautious, looking out for each other is the key to life after lockdown

It’s a very strange world we live in right now, and one thing that’s becoming clear is that we’re all … More

care, corona virus, covid-19, decisions, family, judgement, love, shielding, understanding

Health awareness raising – using our voices wisely

Raising awareness of chronic conditions is vital and social media has hugely increased the reach these messages can have. But … More

advice, challenges, coeliac disease, family, friends, health, kindness, reaction, rheumatoid arthritis, sharing, type 1 diabetes, understanding

Being “that” parent, or “that” patient – why reputation shouldn’t trump resolve

The start of a new academic year is always a bit weird. Every parent I speak to has concerns for … More

advice, anxiety, appointments, challenges, children, family, friends, health, parenting, reaction, school, teachers, understanding

“Is it kind? Is it helpful? Is it funny?” 3 questions for reflection for kids (and adults)

We’re currently trying to help our six-year old Small understand when something is a joke, and when it’s not. It’s … More

advice, children, chronic illness, family, friends, pain, parenting, reaction, understanding

Coeliac disease and summer food – 8 ways to make BBQs, buffets and picnics less stressful

I adore summer – sunshine on my face, beautiful gardens, strawberries-that-taste-like strawberries-should… and, until a couple of years ago, summer … More

challenges, coeliac disease, dietary requirements, events, family, food, sharing, social, understanding

I need to stop worrying about ‘letting people down’!

We have this silly phrase in my family that we use when one of us makes a minor mistake or … More

challenges, chronic illness, energy, events, fatigue, guilt, health, productivity, stress, understanding

Giving a damn again when you’ve given up

Like lots of people who live with chronic illness, I fluctuate between dogged determination to be as well as I … More

energy, exhaustion, fatigue, food, health, mental health, self care, sleep, understanding

Cancelling plans – no more excuses!

For most of my adult life, I’ve been quite a sociable person. The thought of empty diary days used to … More

anxiety, chronic illness, excuses, family, fatigue, friends, pain, plans, rest, understanding

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